Pediatric MS/Kids Corner

Below you will find fun items and information for MSers, family, and friends.

Is your child newly diagnosed? 
9 Must-Ask Questions for Your Kid’s MS Doctor
Kids MS Modifying Drug: Gilenya

"THE FIRST AND ONLY RRMS TREATMENT
TESTED, PROVEN, AND APPROVED FOR KIDS AS YOUNG AS 10"

www.gilenya.com/multiple-sclerosis/treatment-results-children
Through the Looking Glass
"Through the Looking Glass has been providing adaptive babycare services for parents and caregivers with physical and vision disabilities for more than 30 years"
https://lookingglass.org/adaptive-babycare/

Equipment
https://lookingglass.org/wp-content/uploads/Baby-care-products-chart-TLG-9-2016-1.pdf
Pediatric Multiple Sclerosis Alliance 
"Parents and families whose lives are affected by pediatric MS is what we’re about. What started out as a Facebook group has turned into an international movement! Our members come from families (parents, grandparents, other caregivers), doctors, MS advocates, adults with MS, and people from other MS organizations."
http://pediatricms.org/
Multiple Sclerosis Outcomes Worsened When Youths Transition to Adult Care


www.neurologyadvisor.com/conference-highlights/actrims-forum-2020/multiple-sclerosis-outcomes-worsened-when-youths-transition-to-adult-care/
MSIF
MS in Children

www.msif.org/about-ms/childhood-ms/


School Services for Children with Special Needs: Know Your Rights
Children with such special needs are usually entitled to receive additional services or accommodations through the public schools. Children with such special needs are usually entitled to receive additional services or accommodations through the public schools.
Read full atricle at:
www.aacap.org/AACAP/Families_and_Youth/Facts_for_Families/FFF-Guide/Services-In-School-For-Children-With-Special-Needs-What-Parents-Need-To-Know-083.aspx
NMSS
"Estimates suggest that 8,000-10,000 children (up to 18 years old) in the United States have MS, and another 10,000-15,000 have experienced at least one symptom suggestive of MS"
www.nationalmssociety.org/What-is-MS/Who-Gets-MS/Pediatric-MS
NMSS
"Online groups where you can share concerns and information"
"

www.nationalmssociety.org/Resources-Support/Resources-for-Specific-Populations/Pediatric-MS-Support-Network
MSAA

Mommy’s Story: An introduction for younger children to learn about a parent’s MS

Daddy’s Story: An introduction for younger children to learn about a parent’s MS

"This addition to the MSAA family of publications encourages parents with multiple sclerosis to begin the conversation about the diagnosis and ongoing implications of MS with young children. This 16-page book is geared for children ages three to seven"

mymsaa.org/publications/mommys-story/    (order mommy)

https://mymsaa.org/publications/order/daddy/        (order daddy)

https://mymsaa.org/ms-information/publications/   (view publications/PDF)
First Hand Foundation
"First Hand is a not-for-profit, 501(c)(3) organization that provides funding for individual children with health-related needs when insurance and other financial resources have been exhausted"
www.firsthandfoundation.org/
Nimpentoad
"a high fantasy early chapter book for kids. The clever little Nimpentoad leads his fellow Niblings through the perilous Grunwald Forest, overcoming obstacles and encountering strange creatures along the way."
www.goodreads.com/book/show/13051703-nimpentoad
Twignibble
"a very smart and mechanically adept sloth, with animal friends all over the world. Kids love the cute animals and funny inventions; parents appreciate a book that promotes resourcefulness, empathy, and protecting the environment.
"
www.youtube.com/watch?v=UFLa77Z4S1o
Comic Book:  Superior
"Now he's living with multiple sclerosis, missing all the little things he used to take for granted, and escaping into the world of movies and comics with his best friend. Then... SUPERIOR entered his life."
https://comicvine.gamespot.com/superior-1-one-magic-wish/4000-238315/

Children's Hope for Understanding MS  CHUMS
"is a national nonprofit organization designed to enhance awareness and comprehension levels of children whose lives are affected by MS"

http://chumsweb.org/
Needy Meds Camp Programs
"This is a listing of camps for children and adults with specific diseases, and for children who have a parent or a family member with a specific disease."  FREE
www.needymeds.org/camps.taf
Sight for Students
"Provides free vision exams and glasses to low-income, uninsured children."  FREE

www.vsp.com/sfs-find-affiliate.html

 
SSDI - Government Benefilts
"Benefits for Children With Disabilities.

www.ssa.gov/pubs/EN-05-10026.pdf

National Multiple Sclerosis Society
"Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together." 
www.nationalmssociety.org/Resources-Support/Library-Education-Programs/For-Kids-Keep-S-myelin