Below you will find fun items and information for MSers, family, and friends.
Is your child newly diagnosed? 9 Must-Ask Questions for Your Kid’s MS Doctor | ||
| www.gilenya.com/multiple-sclerosis/treatment-results-children | |
| Through the Looking Glass "Through the Looking Glass has been providing adaptive babycare services for parents and caregivers with physical and vision disabilities for more than 30 years" | https://lookingglass.org/adaptive-babycare/ Equipment https://lookingglass.org/wp-content/uploads/Baby-care-products-chart-TLG-9-2016-1.pdf | |
Pediatric Multiple Sclerosis Alliance "Parents and families whose lives are affected by pediatric MS is what
we’re about. What started out as a Facebook group has turned into an
international movement! Our members come from families (parents,
grandparents, other caregivers), doctors, MS advocates, adults with MS,
and people from other MS organizations." | http://pediatricms.org/ | |
Multiple Sclerosis Outcomes Worsened When Youths Transition to Adult Care | www.neurologyadvisor.com/conference-highlights/actrims-forum-2020/multiple-sclerosis-outcomes-worsened-when-youths-transition-to-adult-care/ | |
| MSIF MS in Children | www.msif.org/about-ms/childhood-ms/ | |
| School Services for Children with Special Needs: Know Your Rights Children with such special needs are usually entitled to receive additional services or accommodations through the public schools. Children with such special needs are usually entitled to receive additional services or accommodations through the public schools. | Read full atricle at: www.aacap.org/AACAP/Families_and_Youth/Facts_for_Families/FFF-Guide/Services-In-School-For-Children-With-Special-Needs-What-Parents-Need-To-Know-083.aspx | |
| NMSS "Estimates suggest that 8,000-10,000 children (up to 18 years old) in the United States have MS, and another 10,000-15,000 have experienced at least one symptom suggestive of MS" | www.nationalmssociety.org/What-is-MS/Who-Gets-MS/Pediatric-MS | |
| NMSS "Online groups where you can share concerns and information"" | www.nationalmssociety.org/Resources-Support/Resources-for-Specific-Populations/Pediatric-MS-Support-Network | |
MSAAMommy’s Story: An introduction for younger children to learn about a parent’s MSDaddy’s Story: An introduction for younger children to learn about a parent’s MS"This addition to the MSAA family of publications encourages parents with multiple sclerosis to begin the conversation about the diagnosis and ongoing implications of MS with young children. This 16-page book is geared for children ages three to seven" | mymsaa.org/publications/mommys-story/ (order mommy) https://mymsaa.org/publications/order/daddy/ (order daddy) https://mymsaa.org/ms-information/publications/ (view publications/PDF) | |
| First Hand Foundation "First Hand is a not-for-profit, 501(c)(3) organization that provides funding for individual children with health-related needs when insurance and other financial resources have been exhausted" | www.firsthandfoundation.org/ | |
| Nimpentoad "a high fantasy early chapter book for kids. The clever little Nimpentoad leads his fellow Niblings through the perilous Grunwald Forest, overcoming obstacles and encountering strange creatures along the way." | www.goodreads.com/book/show/13051703-nimpentoad | |
| Twignibble "a very smart and mechanically adept sloth, with animal friends all over the world. Kids love the cute animals and funny inventions; parents appreciate a book that promotes resourcefulness, empathy, and protecting the environment." | www.youtube.com/watch?v=UFLa77Z4S1o | |
| Comic Book: Superior "Now he's living with multiple sclerosis, missing all the little things he used to take for granted, and escaping into the world of movies and comics with his best friend. Then... SUPERIOR entered his life." | https://comicvine.gamespot.com/superior-1-one-magic-wish/4000-238315/ | |
| Children's Hope for Understanding MS CHUMS "is a national nonprofit organization designed to enhance awareness and comprehension levels of children whose lives are affected by MS" | http://chumsweb.org/ | |
Needy Meds Camp Programs "This is a listing of camps for children and adults with specific diseases, and for children who have a parent or a family member with a specific disease." FREE | www.needymeds.org/camps.taf | |
Sight for Students "Provides free vision exams and glasses to low-income, uninsured children." FREE | ||
SSDI - Government Benefilts "Benefits for Children With Disabilities. | ||
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National Multiple Sclerosis Society "Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together." | www.nationalmssociety.org/Resources-Support/Library-Education-Programs/For-Kids-Keep-S-myelin |